FAQ

Questionnaire Development

Information about the KINDLR

When developing the KINDL^R, the goal was to design a short, methodologically suitable and flexible set of instruments which:

• could be completed both by children/adolescents and by their parents
• was available for different age groups and stages of development
• could be used for healthy and ill children (generic approach)
• could be extended by means of specific modules (e.g. for different classes of diseases)
• could be used in different types of study, namely: a) epidemiological studies on the situation of children and adolescents in the Federal Republic of Germany, b) clinical studies dealing with the effects of therapeutic measures on the quality of life of acutely and chronically ill children, and c) in rehabilitation, looking into the effects of rehabilitation programs – and in each case from the perspective of the children and of their parents.

Further information and a detailed description of the structure of the questionnaire can be found in the manual in chapter 1 p. 1-4.

"Disease" module

The additional module "Disease" (non-specific, could be used for any disease) measures the quality of life in children and adolescents with long-term/chronic disease with 6 items.

The disease-specific additional modules, such as the "Oncology" module, measure the quality of life of children and adolescents suffering from these specific diseases. In some cases, very specific questions are asked about the disease or the associated treatment (e.g. chemotherapy in the oncology module).